We are glad to announce you that the continuation of the EUROMAC registry is ensured for the next 3 years through funding obtained at two Spanish national calls (period 2017-2019 - detailed information below).
At this moment, there are 275-registered patients. As registration of patients is a key to any further action to improve their quality of life, and the existence of a registry is an added value to obtain orphan designation of future plausible treatment, we encourage further participation on the registry.
Grant information
Project leader: Dr Tomàs Pinós
Centre: Vall d'Hebron Research Institute
Duration: 3 years, starting 2017
Funding Agency: ISCIII (National Health Plan, Ref: PI16/01492)
Project leader: Dr Tomàs Pinós
Centre: Vall d'Hebron Research Institute
Duration: 2 years, starting 2017
Funding Agency: CIBERER (ACCI-2016-03)
